Emilio's Story

My name is Georgie Cohen, and I contacted the Community Heart Beat Trust with a heart-felt request: an application for a defibrillator for our home.

Although I understand that defibrillators (AEDs) are in high demand, particularly for individual purposes, however I reached out to them tell them Emilio’s Story:

Emilio (Ems) is now 24 years old, and was born with Aortic Stenosis (a narrowing of the aortic valve). Since birth, Ems has had four open heart surgeries. The first was at birth, to widen the aortic valve; the second at five years old, to swap his pulmonary valve in place of the aortic valve, and a pig’s valve was placed in the pulmonary valves place; the third was at 11 years old, to replace the pulmonary valve that wasn’t growing as quickly as Ems was; and finally, his most recent surgery at 21 years old was to replace the pulmonary valve with a human valve. Additionally, at the age of 11, Ems’ contracted Endocarditis, and had to be fed IV anti-biotics from home via a vein in his neck (central line). Although Ems has been through a lot with all his surgeries and yearly ‘MOT’ appointments, we do not feel that Ems would be alive today without the research and help from the various heart charities. Ems is now pretty much fighting fit, but just a hernia in the middle of his chest, and an aspirin a day, he is doing very well. He runs his own business, and has never, ever let his heart condition effect his day-to-day life!

 

 

 

Always living to the fullest!

I work in a psychiatric hospital as an Assistant Psychologist, and have recently been trained in Basic Life Support (including CPR, i-gel, and AED training). Whilst sitting in the room, I realized how important it is that we have one in our home for Ems. We have been told that Ems is prone to heart attacks and possibly cardiac arrest. We have been together for six years, and would be broken hearted (excuse the pun) if there wasn’t a way I could help him if the worst was to happen.

I contacted the British Heart Foundation with the same request, however the response I got was “Sadly, we're not in a position currently to offer funding for individuals”. For this reason, I had a look online, and came across Community Heart Beat Trust. Although I understand that they often donate AEDs to communities as opposed to individuals, I thought it couldn’t hurt to ask! Two days after I contacted them via their website ‘Contact Us’ Form, I got a phone call from an extremely kind and understanding man called Martin, who said that we would be perfect individuals to donate an AED to. We were over the moon!!! All we had to do was fill out a form, and within two days the AED was in our home, with spare pads, and in great condition! Martin asked me to call him when it arrived, which I did, and he took me through the whole process of how to use the machine, ensure it is always running, and general maintenance. He was very helpful, and really took the time for us.

So myself and Ems, and his family, would like to say a HEART FELT THANK YOU to Community Heart Beat Trust. Although we hope to never have to use the AED, we feel a lot safer knowing we have one in our home if anything was to happen. Thank you for taking the time to hear Ems’ story, because it has become a part of mine! And also thank you for all the advice and care you took in taking our case on. It is very much appreciated!!!!!!

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Kind Regards

Georgina Cohen

Disclaimer

Please make sure you have read and understood this disclaimer - It will be assumed that you have read prior to CHT receiving any request. CHT are not responsible for your fund raising, nor your cPAD operations, but may assist in both. CHTs only aim is to support the installation of a cPAD scheme in the most cost effective way possible adhering to Best Practice, and help save lives in your community. This website, and any downloaded information, is for information only on how to go about obtaining and installing a cPAD, and other relevant information. All copyrights and trademarks are recognised. All support for the cPAD will be undertaken by the village committee responsible and via standard manufacturers warranties. Any training organisation will only be responsible for the initial awareness training and not for the functioning or maintenance of the AED. Please do not send any monies to CHT until you have registered your scheme with us, and have agreement from the local ambulance service for the establishment of a cPAD scheme. All schemes must be registered with the local ambulance service (CHT will also undertake this or you can do via this site, but this does not remove responsibility for you to notify the local ambulance service of your AED location). 999/112 (ambulance) must always be called prior to using a cPAD equipment. VAT may be applicable if your organisation is not an eligible body as defined by HMRC. All current or historical claims for VAT will be met by the local community. All schemes will be asked to sign an agreement taking responsibility for their own fund raising and donations to CHT, and then the operation and maintenance of the cPAD equipment. All CHT provided schemes will need to manage their maintenance through the WebNoS online system as a condition of CHT support. It is your responsibility to maintain the equipment in working order and to make sure the local ambulance service is aware of this. WebNoS makes this possible and also acts as an audit trail for management of the equipment. Sites provided by CHT and not using WebNoS may be disengaged from the ambulance service CAD systems. Any web site showing defibrillator locations is for information only, and should not be used in preference to dialling 999. CHT works in close cooperation with the UK ambulance services. Always dial 999 in an emergency

Registered Charity Number - 1132824